LETTER: We need new drug guidelines for extraordinary cases

Dear editor,

I have just read an article about six-year-old Landen Alexa, who has systemic juvenile idiopathic arthritis and has been denied coverage for the $19,000-per-month drug that eases his crippling pain.

This is not the only article I have read about diseases for which treatment becomes ineffective and new treatments must be sought.

This seems to often take people into the realm of drugs Pharmacare says it will not cover.

I believe we need a new category of drugs to cover these kinds of instances, because this is a regular occurrence. I have a friend who was on lithium for her mental illness for many years. It started killing her. If she couldn’t get the new drugs she’d be in big trouble.

And who can imagine the suffering of a six-year-old with juvenile arthritis whose parents can’t afford the new medication now needed?

I suggest that a new category cover drugs which are the follow-up drugs when others become ineffective.

I understand why Pharmacare would want to limit the number of drugs covered, but sometimes a case-by-case consideration is required. Where it is not reasonable or ethical to stick rigidly to guidelines, new guidelines are needed.

I call on our government to both develop new guidelines and to have an interim policy in place to cover situations like Landen’s.

Kathy Duperron


Just Posted

Relay For Life unites community

Before the start of Relay For Life Comox Valley 2019, participating teams… Continue reading

DJ Shub headlines Cumberland’s Party in the Park

On the weekend of National Indigenous Peoples Day, and the summer solstice… Continue reading

Asian business owners adapt to life in the Valley

Government program helps labour market

Boomer’s Legacy Bike Ride raises more than $40,000

42 registered cyclists ride to Nanaimo and back

Millard Piercy Watershed Stewards receive Keep It Living Award

The Millard-Piercy Watershed Stewards were recently honoured as recipients of Project Watershed’s… Continue reading

10 facts about Father’s Day

Did you know that the special day for dads was first celebrated in 1910?

B.C. VIEWS: When farmland protection doesn’t protect farmers

Secondary residences aren’t mansions, families tell Lana Popham

Bombers down B.C. Lions 33-23 in season opener

Former Lion Andrew Harris leads Winnipeg with 148 rushing yards

Northern B.C. family remembers murdered Indigenous woman with memorial walk

Still no closure for Ramona Wilson’s family 25 years later

Monkey spotted on late-night jaunt in Campbell River

Conservation officers also apparently looking for cougar in the area

B.C. university to offer mentorship program for former youth in care

Students using the provincial tuition waiver program will soon be able to form a community at KPU

Cyclists competing in one of the toughest bike races on the planet pass through Fernie

Divide riders looking strong as they finish first leg of 4160 km race

You might not know these B.C. records are public

Hired a lawyer to file a civil claim? Those are published online

B.C. bus driver loses case to get job back after texting while driving full bus

An arbitator ruled that Tim Wesman’s phone usage was a “a reckless disregard for public safety”

Most Read